Friday, 3 February 2012

**Exciting PMDD Campaign UPDATE**

Haha.. it makes me giggle saying PMDD Campaign!! I had no idea what writing off to my MP 6 months ago was going to grow into!!

Back to the important stuff!

After a few, very poor and disappointing replies from my MEP's (Member's of European Parliament) I have finally had a breakthrough in the form of the lovely Catherine Bearder MEP.

She has written to me with full support of the campaign to get PMDD recognised by the World Health Organisation.  She has written on my (and all sufferers) behalf to the WHO and the European Commission.  I have also written to the WHO, but to date, I have not yet received a reply.

To the World Health Organisation, Catherine Bearder MEP wrote...

Letter to Roberto Bertollini - Director of WHO Brussels
Roberto Bertollini - Director of WHO Brussels

World Health Organization (WHO)
Office in the European Union

23rd January 2012

Dear Mr Bertollini,

I have recently been contacted by my constituent named Cat Stone who resides in the South East of England. Ms Stone has been diagnosed with Pre-Menstrual Dysphoric Disorder (PMDD) and since her diagnosis has become an avid campaigner on this issue and is keen to create awareness both here in the UK but also in the EU.

Ms Stone's concern, and it is one that I also share, is that this condition is at present not recognised within the WHO's International Classification of Diseases. Within the UK, the EU and indeed across the globe women are being incorrectly diagnosed with other disorders such as Bi-polar or hormone imbalances. As Ms Stone correctly highlights within her correspondence this often leads to mental health professionals and gynaecologists at a loose end as to how to deal with women who are not responding to the treatment that they prescribe.

Furthermore and potentially of utmost importance is the problems caused by the disabling nature of this condition. Women who suffer with PMDD struggle to secure and retains relationships, employment and on a monthly basis experience mood-swings that cause great difficulty in their everyday lives.

In light of this I am writing to ask you whether this is a condition that the Who Office in Brussels is aware of and if so whether there are current or future plans to promote this in partnership with the European Commission at EU level? Additionally, I am aware that there are plans to revise the WHO's International Classification of Diseases in 2015. Subsequently, are you aware of any plans to list PMDD within the International Classification of Diseases? If no, would you consider supporting and promoting this as an option and as a step forward for women across the EU and the world? I am convinced that in doing so the consequent effects such as diagnosis and treatment guidance for GPs would ensure that women who suffer with PMDD would be able to locate the treatment they deserve in order to manage and improve their everyday lives.

Thank you in advance for your assistance with this matter and I look forward to hearing from you in due course.

Yours sincerely,
Catherine Bearder MEP


I am thrilled that Catherine has taken the time and effort to support this cause and write such a well informed a thorough letter to the WHO.  She also wrote to the European Commission...

Written Question to the European Commission

Subject: Pre-Menstrual Dysphoric Disorder

In the UK it has been suggested that 800,000 women suffer from Pre-Menstrual Dysphoric Disorder (PMDD).  PMDD is a condition that causes chronic mood-swings and affects women's mental health on a monthly or bi-monthly basis.  Women who suffer with this condition often struggle to retain stable relationships and employment and as the condition is not recognised by the World Health Organization's (WHO) International Classification of Diseases, it is often wrongfully diagnosed as Bi-polar or the like.  Women in the UK are often left without treatment as prescribed treatment by mental health professionals and gynaecologists for illnesses such as Bi-polar do not work.

If 800,000 women suffer with this condition here in the UK one can only imagine the millions of women who suffer with this EU wide.  In light of this can the Commission highlight any work that they are carrying out with regard to this condition at EU level?  Furthermore would the Commission also clarify whether they do or would support the call for the recognition of PMDD within the WHO's International Classification of Diseases?'


 
Catherine Bearder MEP
I'm sure I don't need to express how important this is for sufferers of PMDD.  With MP's, MEP's and the Chairman of NAPS behind this, we could really see this change happening.  If PMDD get's fully recognised by the WHO and listed in the ICD - International Classification of Diseases, no doctor will ever be able to say that PMDD doesn't exist.  No longer will women be palmed off by health professionals.  This would be a major change, and in turn, we will see more research and treatment methods being devised. 

Many, many thanks to Catherine Bearder MEP for taking the time to support this campaign.  With her influence and that of the other MP's on board, we are really on the way to getting thigs changed for PMDD sufferers worldwide.

To read my original blog about writing to your MP and MEP's, please click the link below..
http://meetmypmdd.blogspot.com/2012/01/be-change-get-involved-write-letter.html

3 comments:

SamBartlett5babies said...

Fantastic news Cat! You're an inspiration to us all! I just wish right now I had the Brain function to do something productive towards the campaign.

Jennie said...

Brilliant Cat. well done. i too wrote to the WHO but still waiting on a reply. here's hoping. xx

Lisa said...

This is fantastic news!!

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