Showing posts with label Diagnosis. Show all posts
Showing posts with label Diagnosis. Show all posts

Saturday, 29 March 2014

Lindsay's Story *Guest Blog*

I was diagnosed with PMDD just over a year ago. Over the years, my periods worsened and so did the PMT. I started my periods when I was 9, which of course is ridiculously young. My Mum was an early starter too, so it was inevitable that I would be.

When I was 24, I noticed that something wasn't quite right. I was snappy and took offence at the slightest little thing. My bosses would have a go at me over my attitude, and all I could do was say sorry.

When I came home from working abroad, I saw the nurse as I had lost a tremendous amount of weight, and they were concerned about me. As it turned out, physically I was very well indeed, and I commented to the nurse that I felt there was something seriously wrong. She didn't listen, and instead made me feel like a silly little girl and that it was all in my head.

I told my Mum my concerns and whilst she could sympathise, there was little she could do. Having suffered depression in the past, I can recognise signs of depression, but, this was something that I could not comprehend.

Over the years, I went from being weepy (you know like when you cry because there are no cheese and onion crisps in the cupboard!) to becoming nasty and violent. When I was ovulating and three days before my period, I became a monster. I distinctly remember it was the Queens Diamond Jubilee, and I was watching it on tv crying my eyes out and being very angry.

I took two diazepam to calm me down (which I was actually given for symptoms of irritable bowel syndrome believe it or not) alas, they didn't help, and made me so spaced out I couldn't talk or walk.

Another time I was talking to my boyfriend on the phone whilst he was at work. I was sat at the top of the stairs telling him I wanted to kill myself and crying so hard I was retching. My boyfriend stayed with me and managed to calm me down, but, it took a long time.

There have been more occasions of this nature, however, I am sure you can see the pattern emerging. Most recently, my boyfriend has had to restrain me so I wouldn't pick the knife up that I was trying to grab, as I was so utterly in despair that I wanted to end it all.

When I turned 27, things were only getting worse. I was alienating my family and my poor boyfriend didn't have a clue what version of Lindsay he was going to encounter when he saw me. As you can see from the picture, I am a generally happy person, but this thing was robbing me of my life and my relationship.

In a last ditch attempt to get some help, I went to see my GP. He was brilliant, and recognised that I did indeed need help. He prescribed Citalopram to be taken from day 15 to day 28, as a trial to see if this helped and immediately diagnosed PMDD. I realise that not all GP's are as helpful as mine is, however, if you are know something is wrong, please tell them. 

I have been on these tablets for approximately eight months now and, there is a difference. I do still have bad days, but, it does seem to be getting better. I suppose the purpose of me telling you this story, is, I don't want anyone to feel the way I did.

There is help out there, and PMDD is recognized as an illness, and not just something to be brushed aside, and dismissed as PMT. Please don't feel like you have anything to be ashamed of, you don't. I refuse to let this ruin my life and my relationship, and I really hope my story brings comfort and more importantly help.

Lindsay, UK x

If you would like to share your story, please contact Cat.

Friday, 28 March 2014

Mood Charts and Tracking Symptoms

(The following has been revised and updated from my original mood charts post)
What do you do if you think you have PMDD?  What if you've spotted the symptoms and a pattern, but your doctor doesn't know about PMDD or has never mentioned it?
The only way to convince anyone you are suffering from cyclical symptoms is by filling in a mood chart.

I say convince, as a lot of the time, the fear is that no one is going to believe you.  If you have suffered for many years, and no medical professional has ever asked you if there is a pattern, then how do YOU know better than your doctor?  Well, you DO know better than your doctor when it comes to symptoms, but short of your doctore living with your for a month, you have to be able to prove what is going on.  If you see a pattern forming, then all you have to do is get a mood chart filled out over 3 months, so you can SHOW your GP how it comes and goes.
By noting your symptoms and severity, along with your menstrual cycle, it is easier to see patterns forming and for doctors to diagnose PMDD.  No one can deny a set of painstakingly filled in mood charts that over 3 months, show a definite connnection to your menstrual cycle.

You have to be strict with yourself and make sure you do this EVERYDAY, or at the very least the morning after, trying to be as accurate about how you felt as possible.  Make notes of the boxes don't explain it well enough, or keep an 'emotions' diary and actually write small notes about your day.  That way you can often find and connect any outside influence triggers that increase the PMDD symptoms.
 There are many free resources online, including printable mood charts. Printable worked for me as I filled it in in the evening and could keep it safe, or up on the kitchen cupboard door to remind me. It also means you automatically have something to show your doctor.

I used the chart in the book by Diana Dell - The PMDD Phenomenom, as it gave me the option to fill in how bad things were too (by colouring 1, 2 or 3 boxes), so rather than just a yes or no, I could monitor slightly off moods to more intense, severe moods.  This book was the first book I read about PMDD.  I think it is out of print, but you may be able to find a second hand copy).  It's a good book, although may be a little dated now.  Having said that, little has changed since it was published.
Dont be put off by charts that are called Bi-polar or depression mood charts. It's not the name that matters, but the information you track. Just find a chart that works for you.
You may want to try an online/interactive mood charts. Some require membership, but some are free. If you are at the computer a lot, then this might be a better way for you to record you moods each day. Obviously this means making sure you can print everything out to take to the doctors, and that you will always have access to a computer to keep it updated. I can't stress the importance of filling everything in EVERYDAY for at least 3 months. It's the best way for an outsider to know whats been going on up in there, and help you to diagnose your condition.

There is a very modern way of tracking your moods, if you happen to be the proud owner of an iPhone or Smartphone! Just search the app store for 'mood tracker', 'iPeriod' or 'period tracker' and take your pick! I have used Period Tracker (paid version), and it's very simple to use. It's hard to find a tracker that does all the things you want, but it worked pretty good for me. I now have an android phone and am using Womanlog Pro, but there are many others, such as Ovuview, Pink Pad and My period and Ovulation. Most have free downloads, I advise you trial the free version before you pay for one, just to make sure it works for you.
As a side note, my husband downloaded an app called The PMS Alert  I tell him my first day of my period and he taps it into his phone.  He now gets a phone alert when I am entering into my pre menstrual phase, and it's pretty accurate.  It gives him a heads up without me having to say anything.  What I really need now is for one that alerts him to ovulation time, as that can be a challenging time for me to, but all in all, the The PMS Alert app has really helped.
With so many options, we are spoilt for choice! There is definately no excuse NOT to be tracking your moods and symptoms.... so, Get tracking!  I have included a few links, but there are many many more out there.  I hope to include a printable chart from this site in the near future.
Printable

Online
Mood Tracker - Free
NAPS Interactive Mood Chart - Free, membership required.
My Monthly Cycles - Paid subscription for good resources, Limited free account.


Thursday, 10 January 2013

The Menstrual Cycle - A Visual Guide

It never ceases to amaze me how many women don't really know what is going in inside their bodies during the menstrual cycle, or how to chart their cycle.  I don't mean that in an unkind way, it's just an observation.  Knowledge is the best tool you can have, and if you suffer with PMDD you need to do a bit of reading and get some of that valuable knowledge under you belt.  It will help as you try and figure out what happens at what point of your cycle, and having an idea of the physical changes inside you can really help.

Over the years I have come across videos and charts which have helped me to understand the changes my body goes through.  That understanding, in turn, led me to look for ways to support the changes rather than fight against them.  Timing and planning things around the different energies is now second nature.  Knowing my limits at each point of the cycle has really helped me live with PMDD.  I have the odd breakdown, but I am much more in control on a regular basis during all points of my cyclical changes.  That to me is like winning the lottery.

I decided to create a chart just for PMDD/PMS sufferers to refer to.  It shows the fluctuations in hormones, the physical changes, and the energetic/emotional changes.  Hopefully it will give you a good idea as to what is happening in side you when all hell breaks loose!  It also has key words to give you a feel for the natural energy of each phase..

I will go into the seasonal correspondences in another post, but it's quite easy to connect with.  Our energy grows after our period, peaks at ovulation and then slowly wanes until we bleed again. You can see this cycle happen in nature every year.  We have like a mini years worth of seasons in one month!  I have blogged about these theories before, you can find some of them here and here.  I also created a poster about these energies which you can find here -  http://naturalshaman.blogspot.co.uk/p/energy-cycle-poster.html.

We get all stressed out about feeling low, tired or crabby, but if we are pre menstrual or hitting ovulation there is a simple explanation!  Hormonal changes!  If you are still having trouble during the times when the hormones level out and are not finding yourself feeling better, then maybe there are other issues at play.  PMDD will drag you down during pre menstruation and in some cases, at ovulation too.  You should always feel better at each point between to two, but if you are not, you may need to look at whether your unhappiness/frustration is coming from a depression, an unsuitable job, an unhappy relationship, a past trauma or issue that hasn't been resolved.  PMDD plays a huge part in our emotional wellbeing, but it's not the only factor.  Stress and unresolved issues can add to the pressure and make an uncontrollable outburst more likely.

Here is the chart.  It clearly shows the fluctuations and changes the body goes through.  I have added where the PMDD crisis points are, along with the seasons of the year and key words that can give you an idea of the energies present during each phase.  Hopefully it is simple enough to understand, and below, is a written explanation.  Again, I hope I have written it in such a way that it is easy to understand.  I have read many a medical site that uses such technical words that it gets too complicated to understand!


To chart your periods, you start counting on the first day of bleeding.  That is day 1.  You keep counting until you bleed again and the again, the first day of bleeding becomes day 1.  Mark it on a calendar or use an app to keep track of your period.  This helps you to plan around your period by not taking on too much during the times that could be challenging.  I often count forward and also mark day 7, 14, 21 and 28.   That then gives me a quick view of where I will be emotionally and physically throughout the month.  Lots of cycles are longer or shorter, and that is normal.  28 days is just the average.  Ovulation always occurs around 14 days before your period, so if you have a short cycle, say, 21 days, you will ovulate on day 7.. if it is a longer cycle, say 32 days, you will ovulate around day 18.  It IS possible to ovulate twice in a month and to not ovulate at all.

The menstrual cycle is split into 3 phases, follicular, ovulation and luteal. The first phase is the follicular phase and corresponds to when the FSH (follicle stimulating hormone, produced in the brain) sends signals to the ovary to ripen and produce and egg.. This then produces more estrogen from the ovaries to enable the egg to ripen.. At ovulation, increasing estrogen levels from the maturing follicles cause the LH, luteinizing hormone, to surge, which releases the egg. The corpus luteum (a solid body of cells) is left behind at ovulation. The corpus luteum excretes progesterone and small amounts of estrogen and causes the womb lining to thicken in preparation for the egg. This is called the luteal phase. It prepares the body for pregnancy. During the luteal phase, estrogen drops quite rapidly and will fluctuate until your period. At the same time, progesterone is rising. It spikes around day 21, and then drops off rapidly. When the egg is not fertilised, the corpus luteum dies and stops producing progesterone and estrogen, this allows the womb to shed it's lining and cleanse the uterus.

The other hormones involved are those that are produced in the brain that send signals to the ovaries.  Gonadotropic hormones come from the pituitary glad in the brain.  They are controlled by GnRH frequencies that send out pulses to regulate the production of gonadotropic hormones.  In men, this pulse is contstant and steady.  In women, the frequencies change throughout the cycle which is what gives us a cycle that changes and fluctuates.  The change in frequency is what sends out the right amount of gonadotropic hormones to our ovaries to trigger the stages of the menstrual cycle.

The basal body temperature can help clearly indicate ovulation and is important for those trying to conceive or who use the fertility awareness method of contraception.  By orally taking your temperature every morning as soon as you wake (before even getting out of bed) and keeping a record, you will see a drop in temperature at ovulation and then it will rise from around 36.4°F to 36.7°F.  Other signs of ovulation is the consistency of cervical mucus.  At ovulation, this mucus will be fluid and watery.  Some women can tell they are ovulating just by how wet or moist they get.  This fluid helps sperm to swim more easily into the womb.  After ovulation, the cervical mucus will get thicker and more sticky.  This is much harder for the sperm to swim through, which helps with contraception.  For more info on the fertility awareness method and charting temperature, take a look at TCOYF.  Some women do also experience pain at ovulation.  Stabbing sharp pains on either the left or right side can signify which ovary you are ovulating from!  They are known as mittelschmerz.

By having even a basic understanding of the physiology of the menstrual cycle, you can get to grips with why we experience these changes in mind and body.  This is the physical process, but we all know that these changes DO have a significant effect on our mental health, moods and wellbeing. 
When you really learn and come to terms with the fact that our bodily processes are pretty much out of our hands.. meaning, we cannot stop them, (unless we control them with birth control/hormone therapy or hysterectomy) but we can start to look at ways of how to live and work WITH them.  Of course, we can influence our bodily functions.  By eating and sleeping right, exercising and staying away from stress we can encourage a healthier system... 
Never underestimate stress.  Stress can knock out these physical rhythms, causing the cycle to become off balance.  This can lead to irregular periods, changes in cycle length, missing or late periods and all manner of emotional symptoms.

I have produced an alternate version of this chart to share on Facebook, and may look at getting some printed for those who would like a hard copy to stick up at home...  If you are interested in buying a copy, please message me via my Facebook page or use my Kontactr box. 

Chart is for illustrative purposes only and includes the main factors responsible for the menstrual cycle.  There are obviously other smaller players on the menstrual stage, but for the purposes of PMDD education, I have focused on the star performers!
If you choose to download and share, please link back to me and do not remove my copyright from the image.  Please contact me if you wish to re blog, so I can give you a shout out in return!  Thank you. xx

© Cat Hawkins 2012 - Art and design by chaoticat.com.

Thursday, 9 February 2012

Definition of PMDD in the ICD

This is the current definition for the new draft edition of the ICD11 (due out in 2015).

What do you think?

"Severe form of premenstrual syndrome considered as a distinct clinical entity, characterized by prominent symptoms of irritability, anger, internal tension, dysphoria and mood lability. Diagnosis requires a prospective symptom diary documenting specific cyclic symptoms associated with the luteal and menstrual phases of the cycle, and evidence of socioeconomic dysfunction."

I think that sounds pretty good!
I absolutely agree with the term 'distinct clinical entity' as it really does not just fit into one box.

If the WHO has released a current definition for PMDD in the new International Classification of Diseases, then maybe we really will get what we need.  The inclusion of PMDD in the new edition will mean so much for sufferers all around the world.

Fingers, toes, legs and eyes crossed!!


Wednesday, 21 December 2011

PMDD and Me

Today, the Mind blog published a blog I wrote for them titled, PMDD and Me.

This is a really good step, as Mind currently do not cover PMDD in their list of disorders, nor have any leaflets about it.  Ladies with PMDD need to speak up.  They need to make 'the powers that be' aware of their existence, their struggles, their needs.

I hope this goes a little way towards making people listen to women with PMDD, and that women eventually get better support and help to living a better life.

You can find the blog here http://www.mind.org.uk/blog/6201_pmdd_and_me.  Please share the link on Facebook or email...

Never stop passing on information and raising awareness, in whatever small way you can.

Cat x 

Tuesday, 27 September 2011

PMS AWARENESS WEEK - THIS WEEK!


This week is PMS AWARENESS WEEK!
Run by NAPS - The National Association for Premenstrual Syndrome, PMS Awareness Week is held to try and bring PMS into the media and into discussion.

This morning, Bo, from PMS Warrior Blog, appeared on a national breakfast show called Daybreak.
You can see the video here http://www.itv.com/lorraine/health/pms-awareness-week/

While PMS is a much more general condition and not as severe as PMDD, it is necessary to raise awareness.  PMS is a woman's first point of call when she realises there is a cyclical nature to her problems and mood changes.  NAPS is the only organisation in the world that tries to give information, support and a voice to sufferers of PMS and PMDD.

Please feel free to use the image above on your Facebook page to help raise awareness amongst your friends and family.  Many women suffer in silence not knowing where to turn.  NAPS is there waiting to offer support and advice.  On their website you will find a free forum, and mood chart, and by joining up as a member, you will be able to gain access to other benefits.

If you blog, please share this information to your readers.  NAPS is a charity, and need everyone to help spread the word.

Point them in this direction!  National Association of Premenstrual Syndrome - www.pms.org.uk


Tuesday, 13 September 2011

SAD Alert! The Serotonin Factor

Serotonin is the body's feel good hormone. It's a neuro-transmitter and it's function depends on the region of the brain into which it is released. For example, the serotonin neurons in frontal cortex of the brain regulates cognition, memory, and perceptions. The serotonin neurons in the hippocampus regulate memory and mood. The serotonin neurons in other limbic areas such as the amygdala also regulate mood.

Low levels of serotonin are accountable for:

Anxiety, depression, panic attacks, insomnia, obesity, fibromyalgia, eating disorders, chronic pain, migraines, alcohol abuse, negative thoughts, low self-esteem, obsessive thoughts and behaviours, PMS, SAD, and Irritable Bowel Syndrome.

The following factors can cause low serotonin levels:
  • Alcohol
  • Artificial sweeteners (aspartame)
  • Caffeine
  • Cigarette Smoking
  • Diabetes
  • Dietary deficiencies of nutrient co-factors
  • Ecstasy, Diet Pills, and certain medications
  • Genetic Predisposition
  • Hormone Imbalances (thyroid, adrenal, estrogen)
  • Hypoglycemia
  • Insulin Resistance
  • Inflammation
  • Infections
  • Poor Diet
  • Lack of exercise
  • Lack of sunlight
  • Problems converting tryptophan to Serotonin
  • Problems with Digestion
  • Stress and Anger
  • High Cortisol Levels

If you can tick a few things on this list, you are;
a) more likely to suffer with Seasonal Affective Disorder
b) not helping your PMDD or PMS

When you read this, it makes some sense of the plethora of symptoms experienced in PMDD.  Low serotonin levels are almost certainly adding to the nightmare of PMDD as women with PMDD will suffer panic attacks, anxiety, and high levels of stress every month, which affect the production of serotonin. At the same time, the fluctuating hormones will mean serotonin is depleted during the second half of the cycle (luteal) phase, adding to the low serotonin symptoms.

Obviously, it is not your fault if you have a hormone imbalance, are hypoglycemic or have a genetic problem, etc, but if you smoke, eat bad foods and don't get enough exercise, you will not be helping your situation. If you would like to read about serotonin in more detail, please go here...

Serotonin and Light



Low light levels during the winter mean that your body doesn't make as much serotonin, which is triggered into production by light. Serotonin is the chemical in our body that helps us feel awake and gives us energy. Light restricts the body's production of melatonin, which does the opposite job to serotonin... it makes us sleepy and brings about a feeling of tiredness so we can rest and sleep at night. If our serotonin levels remain low, that means were are full of the opposite chemical, melatonin, hence the heavy, tired, and lethargic feelings that SAD and PMDD can bring on.

One way light is measured is by using the term 'lux'. An average indoor room lighting is around 50-200 lux, whereas, outside the light levels will be anything from 1000 to 50,000 lux. Lux refers to the intensity of light. It is thought that an average of 2500 lux is needed to keep SAD at bay and encourage serotonin production. Household lightbulbs for instance, do not have the same intensity as The Sun! And it is this light from the Sun our bodies are craving during the winter months.

There are 3 main ways to treat SAD. Light Therapy, SSRI's and Dietary changes.

Light therapy involves sitting in front of an SAD light box for a certain amount of time everyday, usually in the morning. Light boxes can be very expensive, but it can work really well for some people to combat SAD. 10 years ago, my SAD was so severe I invested in a light box. It was a huge cumbersome thing! I found it difficult to use, as sitting for an hour in front of a night is almost impossible when you have a child running around! So now you are more likely to find me outside whenever it is bright or sunny in the winter, just absorbing the sun!
Light enters the body through the skin and eyes (obviously DON'T look direct at the Sun!). Sun screen and contact lenses/glasses will not allow the body to collect what it needs, so make sure you get the light onto your bare skin and spend sometime without contact lenses or glasses outside, whenever there is a sunny spell!

SSRI's (Selective serotonin re-uptake inhibitors) may be necessary for some people, but this should be researched and discussed with your doctor. Taking anti-depressants work for some people, but for others, working on diet and lifestyle will be just as effective. Remember, you should STILL work on these changes even if you are taking SSRI's, you will get more relief if you help your body rather than work against it.

Dietary changes:

Avoid the factors on the list above such as smoking, caffeine and lack of exercise, and incorporate more of the following into your diet.
  • complex carbohydrates 
  • chicken 
  • turkey 
  • tuna 
  • salmon 
  • kidney beans 
  • rolled oats 
  • lentils 
  • chickpeas 
  • pumpkin seeds 
  • sunflower seeds 
  • baked potato with skin 
  • tahini (sesame butter) 
  • walnuts 
  • avocado 
  • almond butter 
  • Eat a variety of fresh fruits and vegetables (organic if possible) 
  • Drink 6-8 glasses of water daily
By eliminating foods and lifestyle choices that will make your SAD or PMDD worse, and increasing the foods above that help boost serotonin, you will have more of a chance of getting through the winter!

Here are a few other things you can do to help yourself through the winter months:  

  • Get plenty of exercise (30 minutes at least three times a week)
  • Eat regularly throughout the day.
  • Get plenty of natural sunlight 
  • Manage stress and negative emotions 
  • Get 6-8 hours of quality sleep a night 
  • Set time aside for fun and relaxation 
  • Take a multivitamin daily 
  • Prayer and Meditation

The winter is fast approaching. September in the UK is one of my favourite months. The leaves change and fall, the wind picks up, the days are changeable and the temperature drops, but we still have some lovely sunshine popping through every now and then.  October brings Halloween and November, Fireworks...  I can usually deal with winter till December  but by then I am struggling (I'm not a Christmas fan!).  I am planning on upping my serotonin levels by eating better and getting outside when ever I can. Putting lights on in the house is also a good move when the days are dreary, and getting a good nights sleep always helps my mood.

Remember, if your symptoms are really bad and you are feeling unstable, low, depressed, maybe even suicidal, PLEASE contact your doctor and get some support. Realise that it is a temporary situation and the wheel is always turning.. it wont be long till spring is here again!

SAD Alert! The dark months are coming


One of the reasons women with PMDD have such a hard time, is because the hormone fluctuations can affect the levels of serotonin in your body. Serotonin is the main factor is Seasonal Affective Disorder.

Seasonal Affective Disorder can translate into winter depression, and is brought on by the lack of light available in some countries during the winter. I live in the UK and have suffered with SAD for over 10 years... quite possibly longer, but I first realised it was SAD after the birth of my first child. In retrospect, that was the same time my PMDD began to get worse.

The following information is taken form the SADA website

SAD (Seasonal Affective Disorder) is a type of winter depression that affects an estimated 7% of the UK population every winter between September and April, in particular during December, January and February. It is caused by a biochemical imbalance in the hypothalamus due to the shortening of daylight hours and the lack of sunlight in winter.
For many people SAD is a seriously disabling illness, preventing them from functioning normally without continuous medical treatment. For others, it is a mild but debilitating condition causing discomfort but not severe suffering. We call this subsyndromal SAD or 'winter blues.' It is estimated that a further 17% of the UK population have this milder form of condition.

SADA's Symptom list is as follows:

The symptoms of SAD usually recur regularly each winter, starting between September and November and continuing until March or April.

A diagnosis can be made after three or more consecutive winters of symptoms, which may include a number of the following:

Depression
Low mood, worse than and different from normal sadness
Negative thoughts and feelings
Guilt and loss of self-esteem
Sometimes hopelessness and despair
Sometimes apathy and inability to feel 
Sleep Problems
The need to sleep more
A tendency to oversleep
Difficulty staying awake during the day and/or disturbed sleep with
very early morning wakening
Lethargy
Fatigue, often incapacitating, making it very difficult or impossible to carry out normal routines
Over Eating
Craving for carbohydrates and sweet foods leading to an increase in weight
Cognitive Function
Difficulty with concentration and memory
The brain does not work as well, or as quickly
Social Problems
Irritability
Finding it harder to be with people
Anxiety
Tension
Stress is harder to deal with 
Loss of Libido
Less interest in sex and physical contact
Sudden Mood Changes in Spring
Sharp change in mood
Some experience agitation and restlessness and/or a short period of
hypomania (over activity)
No dramatic mood change but a gradual loss of winter symptoms


Imagine having that for 4-6 months of the year ON TOP of the monthly PMDD hell.

If you have a worse time during the winter months, then you are probably suffering from SAD. The link between SAD and PMDD is the lack of serotonin being produced and getting to the brain, which is why SSRI's are often prescribed for PMDD and SAD.

Think back to last winter and previous winters... How do you feel during the winter months?
Do you experience more depressive episodes or angry outbursts?
Do you sleep more and have trouble getting up in the morning?
Do you feel relief when the wheel turns to spring?

For more information, please visit the following links.. and talk to your doctor or health professional if you feel you may be suffering from SAD.

http://www.sada.org.uk/

http://www.sad.org.uk/

http://www.nhs.uk/Conditions/Seasonal-affective-disorder/Pages/Introduction.aspx

Look out for my next post on low serotonin and what you can do to help your PMDD and/or SAD.

What is Dysphoria?

One of the distinct symptoms of PMDD is often overlooked. Dysphoria is the key word that differentiates PMS from PMDD. When do you know you are suffering from PMDD and not PMS? When the dysphoria takes over.... It's not called Premenstrual Dysphoric Disorder for nothing!

Dictonary.com describes Dysphoria as:
dys·pho·ri·a [dis-fawr-ee-uh, -fohr-] noun Pathology:
a state of dissatisfaction, anxiety, restlessness, or fidgeting.
Origin: 1835–45; < Neo-Latin < Greek dysphoría malaise, discomfort, equivalent to dys- dys- + phor ( ós ) bearing + -ia -ia              Related forms: dys·phor·ic  [dis-fawr-ik, -for-] adjective
 The Merriam-Webster's Medical Dictionary describes it as:

dys·pho·ria definition Function: n : a state of feeling unwell or unhappy compare EUPHORIA 

These definitions are very vague and something many people can relate to.
Wikipedia's definition is slightly more in depth:
Dysphoria (from Greek δύσφορος (dysphoros), from δυσ-, difficult, and φέρειν, to bear) is an unpleasant or uncomfortable mood, such as sadness (depressed mood), anxiety, irritability, or restlessness, experienced from very short periods of time up to a lifetime. Etymologically, it is the opposite of euphoria.
Dysphoria refers only to a condition of mood and may be experienced in response to ordinary life events, such as illness or grief. Additionally, it is a feature of many psychiatric disorders, including anxiety disorders and mood disorders. Dysphoria is usually experienced during depressive episodes, but in people with bipolar disorder, it may also be experienced during manic or hypomanic episodes. Dysphoria in the context of a mood disorder indicates a heightened risk of suicide.
Dysphoric mania, as described in the Merck Manual of Diagnosis and Therapy, is "prominent depressive symptoms superimposed on manic psychosis." Symptoms include:
  • crying
  • curtailed sleep
  • racing thoughts
  • grandiosity
  • psychomotor restlessness
  • suicidal ideation
  • persecutory delusions
  • auditory hallucinations
  • indecisiveness
  • confusion

NOW we find ourselves in PMDD territory. Many women describe the dysphoria as a feeling of losing their mind, or going mad. All common sense is abandoned, things that were easy a few days ago, now become impossible. The mind is racing, sometimes tears come with the thoughts and painful emotions the dysphoria brings up.

Persecutory delusions are common. This is a feeling of paranoia, the idea that everyone hates you, that no-one believes you, that there is some conspiracy to keep help from you. That maybe you're just imagining it and are therefore a really bad person, or insane... that spiritually you deserve this and you will just have to suffer. Many PMDD sufferers feel like this at the bad times of the month, they can't believe they can't stop this, 'why can't I control it?'. These feelings of persecution can spur crazy reactions. Pushing family and friends away because you don't trust they believe you. Deleting friends on social networks, falling out and arguing with people, or simple closing the door on everyone emotionally, to keep yourself 'safe'. Hide away, they can't get you if they can't find you.... 

The other fear is that because there is no break in symptoms.. many women suffer EVERY month, sometimes twice a month. PMDD sufferers are very aware of the strain they put on the people around them. I know I personally feel like the people around me are going to get so fed up and bored of the eternal cycle that they will give up helping or trying to understand. I don't know if I could handle seeing someone I liked/loved go through this every month.

On the website www.dysphoria.info, they have a page about the definition of dysphoria. What's interesting is their use of describing dysphoria as a 'state of being'.
State of being, can be interpreted as state of existence. It is YOU and how you are at the moment in time. This is why it feels like dysphoria consumes and absorbs you. It is why it feels like you will always feel/be like this, but as all sufferers repeat the mantra 'this will pass' to remind themselves this is a temporary state, it is all too easy to get lost and be unable to feel any shred of normality – or should we say, non-dysphoric state of being.

I think it is important to learn about this part of PMDD. It is the part that causes the most distress. It is the part of the disorder that clouds our capable minds, and set's us off on a spiral of negative thoughts and emotions. Ladies become forgetful, distracted, withdrawn, clumsy, unable to make simple decisions, hopeless, easy to anger, frustrated.... Some can't bear loud noises or anything repetitive. They will almost always, feel like they are causing this, or creating it, or are imagining the symptoms. They will always feel a ton of guilt and be reliving past emotional traumas. The dysphoria traps you, paralyses you and steals a week or two of every month from you. Every month, without fail, the dysphoria hits and women feel guilty for not being able to stop it.

How many of you have thought, read up, or discovered what dysphoria means? Learn about dysphoria, so next time you tell someone you suffer from Premenstrual Dysphoric Disorder, you can explain the dysphoric part. I feel that word gets ignored and is very misunderstood, yet is the key reason this disorder is SO debilitating. When your thoughts are not your own, how can you trust yourself? How can you know you are making the right decisions? How can you know who to trust on the outside if you look within and don't find yourself?

How do you interpret your dysphoria?
What aspects of dysphoria do you experience?
How do you cope with it?

Tuesday, 19 July 2011

PMDD in the news

A new story hit the papers today, about a 41 year old woman from London called Kirsty.


The women told they're mentally ill when they are really crippled by period pain
By JO WATERS

Kirsty Baranowski stood in the middle of the road hammering on a taxi driver’s windscreen. She was incandescent with rage because he’d suddenly pulled out in front of her.

The outburst was completely out of character, but for 20 years she had been battling with violent mood swings in the run-up to her period.

‘Normally, I was mild mannered,’ says Kirsty, 41, who lives in Southfields, South-West London, with her children, Alexander, ten, and Sophia, nine.

Read more:
http://www.dailymail.co.uk/health/article-2016172/Women-told-theyre-mentally-ill-really-crippled-period-pain.html#ixzz1SZnfJ3ev

Other articles that have been in the papers are:


Donna from Scotland, who's story in 2009 led me back into researching and trying out GHRH injections.. She is still an inspiration, and I hear she is doing really well!

Elizabeth Freundel's story back in 2007:

Sunday, 17 July 2011

Mood charts and tracking symptoms

The only way to convince anyone you are suffering from cyclical symptoms is by filling in a mood chart. By noting your symptoms and severity, along with your menstrual cycle, it is easier to see patterns forming and for doctors to diagnose PMDD.
You have to be strict with yourself and make sure you do this EVERYDAY, or at the very least the morning after (for the day before), trying to be as accurate about how you felt as possible.


There are many free resources online, including printable mood charts. Printable worked for me as I filled it in in the evening and could keep it safe, or up on the kitchen cupboard door to remind me. It also means you automatically have something to show your doctor. I used the chart in the book by Diana Dell - The PMDD Phenomenom, as it gave me the option to fill in how bad things were too (by colouring 1, 2 or 3 boxes), so rather than just a yes or no, I could monitor slightly off moods to more intense, severe moods.


Dont be put off by charts that are called Bi-polar or depression mood charts. It's not the name that matters, but the information you track. Just find a chart that works for you.

You may want to try an online/interactive mood charts. Some require membership, but some are free. If you are at the computer a lot, then this might be a better way for you to record you moods each day. Obviously this means making sure you can print everything out to take to the doctors, and that you will always have access to a computer to keep it updated. I can't stress the importance of filling everything in EVERYDAY for at least 3 months. It's the best way for an outsider to know whats been going on up in there, and help you to diagnose your condition.


There is a very modern way of tracking your moods, if you happen to be the proud owner of an iPhone or Smartphone! Just search the app store for 'mood tracker', 'iPeriod' or 'period tracker' and take your pick! I have used Period Tracker (paid version), and it's very simple to use. It's hard to find a tracker that does all the things you want, but it worked pretty good for me. I now have an android phone and am using Womanlog, but there are many others, such as Ovuview, Pink Pad and My period and ovulation. Most have free downloads, I advise you trial the free version before you pay for one, just to make sure it works for you.


With so many options, we are spoilt for choice! There is definitely no excuse NOT to be tracking your moods and symptoms.... so, Get tracking!

Printable

PMS Symptom Tracker
 

Online


Mood Tracker - Free

NAPS Interactive Mood Chart - Free, membership required.

My Monthly Cycles - Paid subscription for good resources, Limited free account.


These links are also available from the side bar of my blog.
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